This year I am dedicating my miles, muscles and two finish lines to my amazing daughter, Reagan! Reagan, who will be thirteen this May, was diagnosed with Spinal Muscular Atrophy Type II just a few days after her first birthday. SMA is a degenerative muscle disease that has affected Reagan's ability to eat, breathe, and move. She has always had an incredible strength and has shown such love and positivity in spite of the challenges she faces on a daily basis.
This spring, I will be joining forces with MDA and participating in the Milwaukee Muscle Walk on April 29th and the Chicago Spring Half Marathon on May 20th. Every step I take while training for and participating in these events is all for Reagan's future!
MDA has always provided our family with hope, health and happiness. Many of you know of all of the wonderful years Reagan has been fortunate enough to attend MDA Summer Camp, "the best week of the year" with her friends who face these muscle diseases. That week of camp has fostered an amazing independence and sense of self for Reagan, not to mention lots of fun with friends and stories of pranking the boys and hanging by the camp fire. Last year she even moved up to the "big girls" cabin...yikes, she's growing up so fast!
This past August, Reagan was so fortunate to receive her first dose of Spinraza, the first ever treatment for SMA. She has since finished her loading doses and we are seeing her make progress in pool therapy and she even fended off two respiratory infections this past winter like a champ!
This is where you come in. Your donation will help save and improve the lives of individuals with muscular dystrophy and the families who love them. Thanks to supporters like you, MDA anticipates more new treatments in development during the next five years than in the previous five decades combined. Let’s keep and build this momentum.
Please consider making a donation to support Reagan and all her friends living with and fighting muscle disease!