In 2011 my father, sister, and brother were all diagnosed with Myotonic Muscular Dystrophy. It is a rare, progressive, neuromuscular disease that affects every system of the body. It weakens muscles, affects brain functioning, and takes away the ability to walk and even speak clearly. Worst of all it steals precious years away from us and our loved ones. The worst feeling in the world is feeling like we can't do anything to help.
In December 2019, my dad lost his battle with myotonic dystrophy. He was only 61 years old.
That's where MDA Team Momentum comes in. I've set a personal goal to run 13.1 miles as a way to raise money and awareness for those living with neuromuscular disease, and to honor the memory of my dad.
As a member of MDA Team Momentum, I’m dedicating my miles, muscles and personal finish line to helping my family, and other kids and adults living with muscular dystrophy live longer and grow stronger.
Every step I take while training for and racing in the St. Luke's Half Marathon will help MDA fund groundbreaking research to accelerate treatments and cures and provide care and support for my family. My brother and sister are counting on us.
This is where you come in. Your donation will help my brother and sister access a team of doctors who lead the field in muscular dystrophy care. You're giving them more days to enjoy being an aunt and uncle. We don't have enough of those days left.
Thanks in part to MDA Team Momentum participants and donors, MDA anticipates more new treatments in development during the next five years than in the previous five decades combined. Let’s keep and build this momentum. Please consider making a donation to support me in my upcoming race today. Thank you in advance for your support!