Leo's Lions ROAR
Our son Leo was diagnosed with Duchenne Muscular Dystrophy in 2018 at the age of 3. At first, we felt devastated, overwhelmed and lost. We also knew that we needed to put our feelings aside and figure out how we were going to navigate this diagnosis and fight this disease with our son. We dove in and tried to learn everything we could about treatment and research and what we could do to help our son. It was a lonely time until we met allies within the Muscular Dystrophy Association. Then we started to feel like we had someone in our corner that could help and were also united with other families facing the similar challenges.
The MDA helped put us in contact with an amazing medical team at the U of MN which in turn helped us get involved with clinical trials within the first year of his diagnosis. Hope feels like it is on the horizon but it will still take a lot of work to get there.
If you can, please consider donating to our team or contact us at our golf event on September 16th.
Thank you - Megan and Tim