Register for the 5k by March 16, 2020 to receive a T-shirt at Check-in on Race Day.
All participants in the 1k will receive a medal.
Deno is a very active ten-year old boy who loves to laugh and have fun. He enjoys playing video games, running around with his older sister and his friends, bowling, swimming in his pool, playing with his two dogs, Maddie and Rocco, and coming up with creative indoor and outdoor games. He is a genuinely happy boy with a huge smile who always manages to put a positive spin on things, often declaring that he had the “best day ever”. But if you watch him play with his peers, it becomes obvious that he is a few steps slower, a bit weaker, and much less agile, which often prevents him from keeping up.
Six years ago, Deno was diagnosed with Duchenne Muscular Dystrophy. Muscular Dystrophy is a genetic disease which causes progressive loss of muscle starting in early childhood, causing kids to lag further and further behind other kids their age and become wheelchair bound by the time they reach their teens. This weakening eventually affects the heart and breathing muscles which contributes to a shortened life expectancy. While there are an increasing number of treatments available to improve quality of life, there is no cure. Deno is still in great shape for his age, but further advances are needed to help ensure a brighter future for him and the many kids like him.
The Muscular Dystrophy Association provides support for families of children and adults suffering from a variety of neuromuscular diseases, including DMD. They also raise awareness for these diseases and donate a significant portion of the money they raise to current research aimed at finding effective treatments.
Adults and children of all ages and abilities are welcome to participate in the 5K or 1K (12 and under) Run/Walk. By participating in this event, 100% of your donation will go to the MDA to help them continue their work in helping families like us, and kids like Deno.
Thank you for your support,
The Del Sesto Family
For more information please contact Julie Flynn at 508-898-3375 or JFlynn@mdausa.org.