Julian Minh Cortes, a bright spirit who brought joy and laughter to all who knew him, passed away on Monday, April 22, 2024 at the age of 12.
“are you interested in bats, Julian?”
“I’m interested in all bats, all animals and everything in the world.”
Julian was diagnosed at the age of six months with a rare genetic disorder, Pompe disease, just a few years before this destructive, progressive muscle disease was added to the statewide newborn screening panel. Though his body steadily betrayed him, Julian’s radiant outlook on the world continually shone through, illuminated by his rich imagination and his persistent and buoyant connection with everyone whose paths crossed with his.
A proud advocate for others impacted by disability, Julian participated as a role model of assistive and adaptive communication through programs at the Arc of King County and with Woodland Park Zoo and Rooted in Rights, as well as speaking up for inclusion at Broadview-Thomson. Julian would rarely spend his own allowance but would direct the portion held aside to “share” for animal rescue efforts (joining the movement that amazingly brought the brown pelican off of the endangered list!) and to help children and families in war zones.
Julian loved seaplanes, Godzilla, Disney movies and songs, and had a laugh that lit up the room. We will miss him so, so, so, so, so much.
https://mda.donordrive.com/campaign/Remembering-Julian-Cortes